I'm trying a new medication for Fibromyalgia. Topamax. I happened upon an online conversation where people where talking about using it for Fibro (even though it's an anti-seizure medication typically prescribed to prevent migraines). Seems like folks either really love it or really hate it--no in between. It's the kind of medicine where you have to start on a low dose and step up gradually to the goal dosage.
It's hard not to get my hopes up about a medication that could help. I'm not HORRIBLE with my current regimen, but taking 12-15 pain pills a day, plus meds for insomnia, plus Fibro med, plus 4 others is not ideal in my mind. What if I could take this and drop some of those? What if this gave me pain-FREE days instead of just days with less pain?
I'm watching for side-effects right now. This drug has some interesting ones--some that I wouldn't mind getting! On the plus side, people sometimes lose a lot of weight on this med--like 50 pounds a lot of weight! Also, one of the possible side effects is "less sweating." Yeah, I could handle less sweating (since the Savella causes me to sweat like a pregnant fish)! [Thanks P for that saying.] On the downside, some people experience pretty major brain fog (can't recall words, stop mid-sentence). That's already an issue with Fibro so taking something that makes it worse wouldn't be too cool. It can also make leg pain worse.
I've been on the lowest dose for 4 days now. I think I might be experiencing the leg pain side-effect but I'm not sure yet because leg/hip/butt pain is one of my most common Fibro pains. It could be that I would be having a bad few days even without the med. The side-effects are said to usually go away after about 6 weeks, so I will try to be strong for that amount of time to be SURE whether this drug helps or not. And if I lose a few pounds and sweat less, all the better!